Living with MEN1 means learning to make appointments, specialists, and waiting rooms part of ordinary life—even when the emotions they uncover are anything but ordinary. Sometimes grief needs room before hope can find its way back in.

There is a difference between believing something is true and needing it to be true. Our son's diagnosis forced us into that space. It became the beginning of a deeper kind of grief, a deeper kind of faith, and the long process of learning to hold both hope and heartbreak in the same hands.